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Jack's Page
Jack's Page
Story
This is our beautiful boy, Jack 💙
The past two years have been filled with so much joy as we’ve gotten to know his cheeky, loving personality. Jack is the king of big cuddles - given freely to anyone and everyone. When he’s with his brothers, he’s right in the middle of the action: jumping into wrestling matches, stirring them up, and absolutely belly-laughing when they poke his belly button... or even when they burp.
But behind those beautiful big eyes is an incredible epilepsy warrior.
In just his first two years of life, Jack has endured more than most people do in a lifetime. We’ve come face-to-face with the reality of epilepsy - MRIs, EEGs, ECGs, echocardiograms, genetic testing, countless blood tests, multiple ambulance trips to hospital. Jack experiences daily absence seizures and has suffered multiple life-threatening prolonged seizures requiring critical care, intubation, and heavy medication to stop them.
Alongside this, he attends countless appointments with physiotherapists, occupational therapists, speech therapists, a dietitian, and orthotist - all part of supporting his growing little body and big brave spirit.
He has been loaded with medications and poked and prodded more times than we can count - yet through it all, he continues to show the most incredible strength, resilience, and light.
By sharing our journey and doing the Purple Walk 4 Epilepsy, we hope to raise awareness and help others truly understand what it means to support someone with epilepsy. It’s more than just being there during a seizure - it’s standing beside them every single day, showing compassion, understanding, and advocating for them in a world that often can’t see the battles they face.
We don’t know where your epilepsy will take Jack in the years to come, but wherever it leads, we will be right there - every step of the way. We’ll always surround him with love, shower you in purple hearts, and continue to advocate for epilepsy awareness until there’s a cure 💜💜💜
Epilepsy WA
Since 1963, Epilepsy WA has been tirelessly raising awareness and providing vital information and support to West Australians living with epilepsy, their families, and carers. There are over 30,000 West Australians currently living with epilepsy. Epilepsy is one of the most common, yet often misunderstood, neurological conditions, affecting up to 1 in 25 people, whilst 1 in 10 of us will have a seizure in our lifetime. Epilepsy WA help those living with epilepsy by providing a range of support services and we constantly strive to bring epilepsy out of the shadows and reduce stigma. With your help, we will continue to do so for another 60 years and more! We rely heavily on the support of the community to help us continue offering vital support services to the WA community. Visit our website to learn more about our services and supports. We are the only WA based epilepsy association, exclusively servicing WA. We are in WA, for WA. Please consider making a tax-deductible donation today and help us support the 30,000 West Australians living with epilepsy. Every dollar donated in WA, stays in WA.
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